Hannah Colfer’s Story
I’m sure you all know who Chris Colfer is and you’ve heard his fantastic story about how he got the role of Kurt Hummel on Glee. However, there’s another member of the Colfer family whose story is even more inspirational. Meet Hannah Colfer, Chris Colfer’s little sister. Hannah suffers from severe epilepsy and has approximately 50 seizures an hour. While her condition is quite tragic, her family works very hard to the the best of the situation.
Below is a radio interview that Karyn Colfer, Chris and Hannah’s mom, did with KYNO Radio in Fresno, CA. Karyn talks about her daughter’s condition and all that they have had to go through as a family. She says that now that Chris is out of the house and she has a little more time on her hands, she has affiliated herself with an organization that is dedicated to finding a cure for epilepsy, CURE – Citizens United for Research in Epilepsy. Please watch the inspirational video below, but be warned that some of the images of the side effects from Hannah’s epilepsy medication are a bit graphic.
If you would like to know more about CURE, you can visit their website. Also, I’m sure everyone would appreciate it if you took the time to make a donation, no matter how small. If you would like, you can even make it in Hannah Colfer’s name by checking “Yes, this is an honor or memorial gift.” on the donation page.
Lastly, if you’re going to Tweet about this, please include the hashtags #WeLoveHannahColfer and #SupportCURE in order to help raise awareness.
Thank you very much! Hannah is truly an inspiration and I’m sure Karyn Colfer is very proud of both of her amazing children. :)
The entire Colfer family is so inspirational. I cannot begin to imagine how strong they must be to deal with Hannah’s unfortunate situation. And she and Chris look so much alike! I have so much respect for them all.
My computer doesn’t let me watch the video, but I’m curious, Have you tried the Atkins Diet? My son is in “continuous Seizure” and I think it helps. He’s on 4 different neural depressants and that & the diet keep him fairly functional… :-P
(And barely twitching…)
They say it acts to trick the body into thinking it is in a state of fasting, which has been found effective for hundreds of years (before all the meds we have access to now.)
Bottom line is: lotsa protein next-to-no carbs.
Good luck!
~N~
wow Hannah looks kinda like chris
Wow. Chris and Hannah are such inspirations. Chris, for not letting the bullying get to him and Hannah, who is my age, for staying strong even with a horrible condition. They will both be in my prayers tonight :)
find the cure!
het my father suffers from epilepdy and i kno what it feels like when the person u love cannot remember ur name, but u are a strong person and i know u will get through yhix
god bless xxx
Chris and Hannah have both permanently touched me in so many ways. They are walking inspirations, that should teach us all some valuble lessons.
Chris’s Lessons:
1. Never underestimate yourself.
2. Chase after your wildest dreams.
3. Be yourself, and be proud of who you are.
4. You can occasionally strut your @$$ off in a Single Ladies number!!!
Hannah’s Lessons:
1. When in doubt, always look on the bright side of things!
2. Live life to the fullest, any day could be “the day.”
3. Be courageous–find the Cowardly Lion inside you (the brave part!)
4. Never give up.
You two are my idols, and be proud of that. Chris and Hannah, if you are reading this, please know I love and support every move you make, whether it’s good or bad, gleeful or sad. :) :) <33
P.S. I’m GleekGrrrrl!!!!!!!!!
Oh my gosh i feel so bad for the whole colfer family that must be so hard on them knowing that they cant do anything about it!!!!!!!!!!!!!
hannah looks like chris
Hi. Very good information. Thanks for this. Keep up the good work
Oh wow! That is truly heartbreaking! Kudos to them all for being an amazing force<3. And how old is hannah now?
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very helpfull that article. thanks mate./12.01.2011 03:45:13
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Oh my gosh… I go to school with Hannah, and I knew she had epilepsy, but I never knew it was so bad… I feel so bad for her. It’s amazing that their family can stay so strong, and that there’s so much pure love there… I’m going to have to ask my mother to donate to this cause.
Hi my name is helen walker and i live in doncaster
i am 26 years old. I also suffer from epilepsy but it’s nearly controlled. I have 1 a day which is good
My name is Jen Kantrowitz. I have had Epilepsy since I was 14 years old. It’s been 5 years since I was diagnosed. I only have seizures about once a year, sometimes as many as 4 times a year. Most of them are nocturnal, meaning I am asleep when I have them and wake up with headaches. I have no idea when I will have them. I have been taking medication since to control it since I was 14. I went nearly 2 years, from the time I was 14, seizure free. However, just after my 16th birthday, the seizures came back and have been a near yearly event since then. I haven’t been able to be a normal teenager doing things such as getting my driver’s permit and then license, or hang out with my friends without the fear of seizing scaring me.
I know that many people say that they understand, but the reality is that they really don’t know what that fear is really like.
I’ve taken a page from Hannah’s book and I am living every day to the fullest, not taking anything for granted. This girl and her brother have really inspired me to do what I love best, be myself, and chase my dreams. Right now, I am chasing my dream to get my Bachelor’s Degree in Health Sciences and I’ll follow my heart from there.
Chris and Hannah Colfer, you inspire so many people. I don’t think you even realize how much you both inspire people.
Ive had numerous EEGs and i wasnt doped up at all dont know what kind of Drs would dope up a kid and deprive her of sleep when there was no need at all
The thing that Karyn talks are so true.. People should talk more about Epilepsy. I was diagnosed when I was 4 years old so I have suffered from it 14 years and it affects so much in my life. I have petit mal but it’s not that bad. People don’t see from outside that i’m having a seizure but my brains are having power cut’s all the time. they said that my epilepsy will be over when I am in puberty but it wasn’t. I try to talk about it with my friends and tell them so I appreciate the whole Colfer family because they talk about it and they want that people know and that doctors find the cure.
ps. When I was little they used to deprivate me to sleep but not anymore because I can lay still in the examine bed.
The ketogenic diet may be Hannah’s saving grace. The movie “First Do No Harm” illustrates one mother’s dedication to saving her severely eplileptic son’s life. Please look into this for Hannah. It has saved so many and many have no more seizures
Sorry about your sister. I know it as to be hard for u and your family to have to go trouth. U r my favorite on glee. I love u. your not a afrid to show the real u. Your sister is so brave to have to go thougt what she has to. I know how she feels to go to the hospital. I ben there a lot before. I had to go there a lt when I was a young it strated when I was a baby. I had cycle vomloting. I use to get so sick I would not stop throw up and I would have to go to the hospital alot. I am glad I don’t have to go anymore it is not fun at all to have to be in the hospital it is very scary. So tell your sisster I know how she she feels and that and that I hope she gets better soon. How she gets better and doesn’t ave to go the hospital anymore. I am praying for her. I hope I get to met u and your sister one day. I love Glee I am the # 1 fan of the show. I have all the movies and I watch Glee on Tuesadys every Tuesday there is a new Glee.I love the song they R way better then then when the organal artist sings them. i am said to see the show end. U guys could of got qa few more seasons out of it. I got a little upset when i heard that there was going to be only a few more shows left.i think u guys can still do Glee even tho u guys r going to college just go to college and then in the summer u guys come back to the school and sing in the summer with all the glee people just for fun.
U can e mai lme to talk about it if u waNRT
Wow. Chris and Hannah are such inspirations. Chris, for not letting the bullying get to him and Hannah, who is my age, for staying strong even with a horrible condition. They will both be in my prayers tonight :)
find the cure!